Thursday, March 1, 2012
Since then it's been a whirlwind trying to get her the services she needs. The neurologist did prescribe OT and PT. We are having a lot of fun trying to figure out what her sensory diet is. This includes activities that she can do that will allow her to settle down and concentrate in class, as well as activities that will allow her to participate in story time appropriately. It will take some time working with the OT before we find that magic combination. My only regret is that we had to leave our doctor after all this time. He was there for us when we received word that we could not have children. He worked with us through our depression. He was ecstatic with us when we decided to adopt. He was so excited to help us fill out all our medical forms. He almost cried when we brought our daughter home and had her first appointment. He's really enjoyed seeing her grow and develop. Unfortunately, he's missed several big flags, and I've just had enough.
Whenever I would bring her in I would mention how gassy she was and expressed concern how that wasn't normal. He just kept insisting that she was just gassy. Fast forward a bit, and we learn that it was lactose that was doing it. We had a similar battle just recently and discovered all dairy and soy causes issues, too, but I had to do all my own detective work to figure that out. I have been concerned about her size. She is very small for her age. She will be five in a couple days, yet some two and a half year olds are bigger than she is. Her two year old cousin wears the same size pants! However, I was met with "she's just petite".
The diagnosis of FAS totally explains her size. It also explains her digestive issues, as I later discovered that a lot of children with FAS tend to be intolerant to several foods. It also explains the SPD. When I confronted our doctor with the evidence of FAS, he ignored it and said she just looks Russian. I've had enough. He expressed concern over "labeling" her too early because it will follow her the rest of her life. However, we have to acknowledge what's before our eyes. There are certain behaviors and habits that need to be addressed if she is to become a well-functioning student, and ignoring the FAS diagnosis could prevent her from getting the help she needs.
Currently, she is working with an OT to help us figure out what she can do to settle her system. We are also seeing a PT to help with gross motor issues. We are waiting to make an appointment with a developmental/behavioral pediatrician so we can confirm if some of the other behaviors are FAS related or if there is additional ADHD to work with also.
All in all, we are having a busy Winter/Spring. Hoping to write more later.
Thursday, September 29, 2011
So, I'm back to "normal" in some ways. I just have to build up my strength. My right arm is still very weak, and I still have trouble reaching behind me, but all other motions are back to normal. I think it was wise to focus on preparing the house for the surgery and also to keep a low profile after the surgery. Now, we can concentrate on our decision to adopt again!
Basically, we can't afford another international adoption. Even domestic adoptions are out of reach. I know there are grant programs and such, but I'm not sure that's where God is leading us this time. We have been considering adopting from foster care. We have some friends that have adopted through foster care, and we will schedule some meetings with them to kind of feel out the process and ask some questions. We will be taking our time, however, and it might be another two years before we finally have a child. We do need about 33 credits of PRIDE training through DCFS, and they have to be taken in consecutive weeks, so about 9 weeks or so. Not sure yet on the details. So, I looked at the schedule for DCFS training in our area, and most sessions in our area are done already. That's ok because we have to have a completed homestudy before we can begin the program. Perhaps by the time we get the homestudy done, it will be a new year, and we can start the program then. Like I said, we're not in a huge hurry, but we've both agreed that we can start, so it's just a question of finding the right agency and scheduling the home study.
So, now about Grace. She loved her preschool year, and she graduated in May. We had a fairly good summer. The weather wasn't great, and I spent a lot of time preparing for the surgery, but we did get to the zoo a few times and she was able to go to parks and play outside and such. We also went to Indiana to visit family a few times. August was hard. After the surgery, I was in a very bulky sling that attached my arm to my side so I couldn't move my shoulder. No driving and no lifting for me. I tried to take her to the park a few times. Mostly, though, we stayed around the house. She weathered the time well, though. She's very independant, and she was able to dress herself, and take herself to the potty. She was very willing to help me in any way she could, and she very sweetly prayed for me every night. I owe my quick recovery to her prayers.
Well, I must stop for now. Time to make dinner! I'll try to update more frequently, especially as we start the paper trail for another adoption!
Friday, April 22, 2011
Well, so on to the other news.....
Earlier this month, I saw an ad for an adoption seminar coming up in our area. I signed us up for it and then realized that our own pastor at Calvary in Oak Park is going to be the keynote speaker. I am looking forward to this seminar. So, as I was thinking about it, I realized that this seminar is worth DCFS credits. Probably not much-like 5 or something, but I realized that I don't think we can keep those credits for very long. I thought that if we could start a home study we could use those points. I approached the subject with Brian and he agreed. I've contacted Adoptuskids.org, and they've passed our information along to an agency in Coook county that specializes in adopting from foster care, which is what we are interested in. So, although we haven't started the home study quite yet, I guess you could say that we've started the adoption process once again! It will be interesting to see what this process is like compared to the first one. I hope we are more prepared for the roller-coaster ride! Wish us luck. I'll probably be posting more often with all our frustrations and triumphs.
Wednesday, February 2, 2011
Well, we survived the big blizzard. We all had fun waking up this morning and seeing all the snow. Looking out our back door, snow was piled up halfway up our door, so we couldn't get out our back door. For our front door, the snow blew across to our neighbors, so our stairs were clear. However, my husband never put glass in our storm door, so snow had blown in between. The outside of our front door was covered in snow, and I wasn't able to get it closed again once I opened it to clear the snow. There was snow wedged in the little cracks, and we had to clear it in order to shut the door. Our cars cannot be moved. We are in a townhouse, and we have 30 parking spots along a busy street. Not only do we have about 20 inches behind our cars, but the plows also pushed all the snow off the main road right along our parking area. We tried to call plows to move the snow, but all of them said that they couldn't even get in to begin to plow. Others said they can't do it because there is so much snow that they would need a dump truck to move the snow-which they didn't have access to. All 30 of us are going to try to call the village public works tomorrow and complain because the village snow plows helped push that snow behind our cars and therefor they should be responsible for helping us remove it.
We did venture out in the late morning and early afternoon. We shoveled the sidewalks. Well, our neighbors shoveled the sidewalk, I just did a little bit by our stairs. The snow piles were so high from shoveling we were able to create an area for the kids to sled. It was actually pretty fun. Later in the afternoon while Grace was taking a nap, I braved the snow to go out and clear some of the snow off my car. I had a really hard time removing the snow around my car just to get to the doors. I then used my shovel to remove the snow from the top of my car. At least when the sub-zero temps fall tonight, there's no snow on the car to freeze to it! I just can't believe how much snow is behind our cars! I don't know who we are going to end up getting to remove the snow, but I pray it's tomorrow. Here's another video to show the snow piled up behind the cars.